ALABAMA

Hemophilia and Bleeding Disorders of Alabama
802 Midland Ave.
Muscle Shoals, AL 35661
Phone: 1 205 339-0245
Chris Blair, President
E-mail: simon_bc@hotmail.com

ALASKA

Alaska Hemophilia Association & Treatment Center
2810 Aspen Drive
Anchorage, AK 99517
Phone: 1 907 243-4045 or 1 888 909-4045
Fax: 1 907 243-4038
Louise Cobb, BSW, MAT, Program Director
www.alaskahemophilia.com
E-mail: akhemo@aol.com

ARIZONA

Hemophilia Association of Arizona
818 East Osborn Rd., Suite 105
Phoenix, AZ 85014
Phone: 1 602 955-3947
Toll-free phone: 1 888 754-7017
Fax: 1 602 955-1962
Website: www.hemophiliaz.org
Richard Traulsen, President
rtraulsen@begamlaw.com
Alexis Christensen, E.D.
alexis@hemophiliaz.org

ARKANSAS

Hemophilia Foundation of Arkansas
351 Valley Oak Lane
Austin, AR 72007
Phone: 1 501 941-3109
Donna Tozer, Secretary
Angie Clark, President

CALIFORNIA

Central California Hemophilia Foundation
P.O. Box 163689
Sacramento, CA 95816
4151 Dena Way
Sacramento, CA, 95821
Phone: 1 916 734-3461
Fax: 1 916 489-1569
Sean Hubbert, President
subbert@nufactor.com

Hemophilia Association of San Diego County
P.O. Box 163689
Sacramento, CA 95816
4151 Dena Way
Sacramento, CA 95821
Phone: 1 916 734-3461
Fax: 1 916 489-1569
Sean Hubbert, President
subbert@nufactor.com

Hemophilia Foundation of Northern California
6400 Hollis Street, Suite 6
Emeryville, CA 94608
Phone: 1 510 658-3324
Toll-free phone: 1 888 749-HFNC (4362)
Fax: 1 510 658-6111
Website: www.hemofoundation.org
Mike Kawalek, Chief Administrative Officer
Maria Crescimbeni, Bilingual Outreach and Referral Coordinator
Clarence Benjamin, Jr., President

Hemophilia Foundation of Southern California
6720 Melrose Ave.
Hollywood, CA 90038
Phone: 1 323 525-0440
Fax: 1 323 525-0445
Website: www.hemosocal.org
E-mail: hfsc@hemosocal.org
execdir@hemosocal.org
commadv@hemosocal.org
Linda Corrente, Executive Director
Helena Smith, Office Manager
Jennifer Mermilliod, President
Kristen Truccone, Special Projects

Hemophilia Council of California
1507 21st Street, Suite 206
Sacramento, CA 95814
Phone: 1 916 448-7444
Fax: 1 916 448-0219
Val Bias, Executive Director
www.hccalif.org
E-mail: hccaids@aol.com

COLORADO

Hemophilia Society of Colorado
655 Broadway, Suite 575
Denver, CO 80203
Phone: 1 303 629-6990/1 888 687-CLOT
Fax: 1 303 629-7035
Website: www.cohemo.org
E-mail: hsc@cohemo.org
Larry Hoyle, Chapter Administrator
Ben Markl, President
Sean Perkins, Development Coordinator

FLORIDA

Florida Hemophilia Association
Florida Hemophilia Association
18001 Old Cutler Road, Suite 501
Palmetto Bay, FL 33157
Toll-free phone: 1 888 880-8330
Website: www.floridahemophilia.org
E-mail: info@floridahemophilia.org
Debbi Adamkin, Executive Director
dadamkin@floridahemophilia.org or
corchel13@aol.com
Linda Thomas, President
linda316@bellsouth.net

Hemophilia Foundation of Greater Florida, Inc.
1350 North Orange Avenue, Suite 227
Winter Park, FL 32789
Toll-free phone: 1 800 293-6527
Website: www.hemophiliaflorida.org
E-mail: Hemofoundation@earthlink.net
Fran Haynes, Executive Director
franhaynes@hemophiliaflorida.org
Ron Sachs, President
taipan@cfl.rr.com

Hemophilia Foundation of Southern Florida
P.O. Box 85279
Hallandale, FL 33008
Phone: 1 877 423-1832
Fax: 1 954 457-8224
Rosalia H. Boullon, President
E-mail: rboullon@bellsouth.net

GEORGIA

Hemophilia of Georgia
8800 Roswell Road, Suite 170
Atlanta, GA 30350
Phone: 1 770 518-8272
Fax: 1 770 518-3310
Website: www.hog.org
E-mail: mail@hog.org
Patricia Dominic, CEO
Eugene F. Sandor, CGO

GUAM

Hemophilia/Bleeding Disorders Foundation of Guam
P.O. Box 20640
Barrigada, GU 96921
GUAHAN Project Cove
Pacific Business Center, Suite 301 or 306
Chalan San Antonio
Tamuning, Guam 96921
Phone: 1 671 688-2635
Fax: 1 671 647-5684
E-mail: braces@ite.net
roselie.zabala@dphss.guam.gov
Angela Takney
angelatackey@hotmail.com
Alex Silverio, Treasurer
alexsilverio@hotmail.com
Eugenia Quichocho, President
eugniaqui_83yahoo.com
Constit ID no.: 0003555

IDAHO

Hemophilia Foundation of Idaho
P.O. Box 7622
Boise, ID 83707-1622
1220 S. Vista Ave., Suite F
Boise, ID 83705
Phone: 1 208 344-4476
Fax: 1 208 345-4461
E-mail: hfi@velocitus.net
idahoblood@velocitus.net
Janet Angell, President
Mary Simmons, Vice President

Snake River Hemophilia and Bleeding Disorders Association
P.O. Box 203
Newdale, ID 83436
Phone: 1 208 458-9884
Chad Stevens, President

ILLINOIS

Hemophilia Foundation of Illinois
332 South Michigan Avenue, Suite 1135
Chicago, IL 60604
Phone: 1 312 427-1495
Fax: 1 312 427-1602
Website: www.hfi-il.org
Robert Robinson, Executive Director
Mike Toohey, President

INDIANA

Hemophilia of Indiana
5170 E. 65th St., Suite 106
Indianapolis, IN 46220
Phone: 1 317 570-0039
Toll-free phone: 1 800 241-2873
Fax: 1 317 570-0058
Website: www.hemophiliaofindiana.org
Michelle Rice, Executive Director
Mrice@hemophiliaofindiana.org
Sally McCarty, Insurance Specialist
Jerry Phillips, President

KENTUCKY

Kentucky Hemophilia Foundation, Inc.
1850 Taylor Ave., Suite 2
Louisville, KY 40213
Phone: 1 502 456-3233
Toll-free phone: 1 800 582-CURE (2873)
Fax: 1 502 456-3234
Website: www.kyhemo.org
E-mail: info@kyhemo.org
Ursela Lacer, Executive Director
ursela@hyhemo.org
Andy Mayer, President

LOUISIANA

Louisiana Hemophilia Foundation
3636 S. Sherwood Forest Blvd., Suite 450
Baton Rouge, LA 70816-2285
Phone: 1 225 291-1675
Fax: 1 225 291-1679
Website: www.louisianahemophilia.org
E-mail: lahemophilia@hipoint.net
Lori Keels, Executive Director
Tres Major, President

MARYLAND

Hemophilia Foundation of Maryland, Inc.
13 Class Court, Suite 200
Baltimore, MD 22134
Phone: 1 410 661-2307 or 1 800 964-3131
Fax: 1 410 661-2308
Kathy Robinette-Sternberg, President
Emma Miller, Executive Director
www.hfmonline.org

MASSACHUSETTS

New England Hemophilia Association
347 Washington Street, Suite 402
Dedham, MA 02026-1862
Phone: 1 781 326-7645
Fax: 1 781 329-5122
Website: www.newenglandhemophilia.org
E-mail: neha@theworld.com
Barbara Gordon, Vice President
b.gordon@cox.net
Patrick Mancini, President

MICHIGAN

Hemophilia Foundation of Michigan
1921 West Michigan Avenue
Ypsilanti, MI 48197
Phone: 1 734 544-0015
Phone: 1 800 482 -3041
Fax: 1 734 544-0095
Website: www.hfmich.org
Ivan Harner, Executive Director
harner@hfmich.org
Lauren Shellenberger, President

MINNESOTA/DAKOTAS

Hemophilia Foundation of Minnesota/Dakotas
750 South Plaza Drive, Suite 207
Mendota Heights, MN 55120
Phone: 1 651 406-8655
Toll-free phone: 1 800 994-4363
Fax: 1 651 406-8656
Website: www.hfmd.org
E-mail: hemophiliafound@visi.com
James Paist, Executive Director
Aaron Reeves, President

MISSISSIPPI

Mississippi Hemophilia Foundation
P.O. Box 13608
Jackson, MS 39236-3608
Mailing address—UPS or FedEx
36 Avery Circle
Jackson, MS 39211
Phone: 1 601 957-6483
Patty Lyons, Treasurer
patty8501@aol.com
Lou Callum, Secretary
Ken Ray, Vice President
Dan Davis, President

MISSOURI

Gateway Hemophilia Association
462 N. Taylor, Suite 200
St. Louis, MO 63108
Phone: 1 314 361-9500
Fax: 1 314 361-9505
Website: www.gatewayhemophilia.org
E-mail: hemophilia@sbcglobal.net
Don Semple, Treasurer
Peggie DeVoy, Board Member

Midwest Hemophilia Association
P.O. Box 412866
Kansas City, MO 64141
Phone: 1 913 551-7176 or 1 800 431-7960
Fax: 1 816 587-2191
Dan Boles, President
www.midwest-hemophilia.org
E-mail: info@midwest-hemophilia.org

MONTANA

Rocky Mountains Hemophilia and Bleeding Disorders Association
P.O. Box 3468
Bozeman, MT 59772-3468
Phone: 1 406 586-8674
Fax: 1 406 388-5650
8278 Chapman Road
Bozeman, MT 59718
Website: www.rockymountainhemophilia.com
E-mail: RMHemophilia@earthlink.net
Suzanne Marshall, President
scmarshall1969@aol.com
Paulette McLane, Executive Secretary

NEBRASKA

Nebraska Chapter of the National Hemophilia Foundation
215 Centennial Mall South, Suite 512
Lincoln, NE 68508
Phone: 1 402 PH-BLOOD (742-5663)
Fax: 1 402 742-5677
Website: www.nebraskanhf.org
E-mail: Office@nebraskanhf.org
Carl Clark, President
carlclark@westside66.org

Heartland Hemophilia Association
P.O. Box 19304
Omaha, NE 68119
Phone: 1 402 455-0691
Rita Shepherd, President
www.heartlandhemophilia.org
E-mail: shepherd7721@cox.net

NEVADA

Hemophilia Foundation of Nevada
P.O. Box 90158
Henderson, NV 89009
431 Chateau Drive
Henderson, NV 89015
Phone: 1 702 564-4368
Fax: 1 702 564-2299
Website: www.hemophilianevada.org
E-mail: Hfnv01@msn.com
patricialpatterson@msn.com
Ramona Alicea, President
Jeanne Fivash, Chapter Administrator
JFIVASH@msn.com

NEW JERSEY

NEW MEXICO

Sangre de Oro Hemophilia Foundation of New Mexico
P.O. Box 51494
Albuquerque, NM 87181-1494
Mailing address—UPS or FedEx
1601 Valdez Drive NE
Albuquerque, NM 87112
Phone: 1 505 341-9321
Toll-free phone: 1 866 341-9321 ( New Mexico only)
Fax: 1 505 292-5818
E-mail: sangredeoro@comcast.net
Loretta Cordova, Executive Director
Johanna Chappelle, President

NEW YORK

Bleeding Disorders Association of Northeastern New York
P.O. Box 3707
Albany, NY 12203
61 Main Street
Petersburg, NY 12138
Phone: 1 518 782-9787
Fax: 1 518 356-5612
Website: www.bdaneny.org
E-mail: bdaneny@bdaneny.org
Deborah Huskie, Co-Executive Director
dh235@aol.com
Kevin Pelletier, Co-Executive Director
bdaneny@aol.com
David Huskie, President
bdaneny@aol.com

Hemophilia Center of Western New York
462 Grider Street
Buffalo, NY 14215
Phone: 1 716 896-2470
Fax: 1 716 898-5537
Website: www.wnyhemophilia.com
E-mail: hemoctr@pce.net
Rosemary Holmberg, Executive Director
holmberg@wnyhemoctr.org
Thomas Long, President

Mary M. Gooley Hemophilia Center
1415 Portland Avenue, Suite 425
Rochester, NY 14621
Phone: 1 585 922-5700 
Fax: 1 585 922-5775
www.hemocenter.org
E-mail: Robert.fox@viahealth.org
Robert Fox, CEO & President
Yvonne Ace-Wagoner, Chairman

Bleeding Disorders Association of Southern Tier
P.O. Box 538
Binghamton, NY 13902
Phone: 1 607 761-1665

Jon Davis, President

Hemophilia Association of New York, Inc.
104 East 40th Street, Suite 506
New York, NY 10016
Phone: 1 212 682-5510
Fax: 1 212 983-1114
Thom Harrington, Executive Director
www.hemophilia-newyork.org
E-mail: hany@bestweb.net

NORTH CAROLINA

Hemophilia of North Carolina
P.O. Box 70
Cary, NC 27512-0070
Phone: 1 919 319-0014
Toll-free phone: 1 800 990-5557
Fax: 1 919 319-0016
E-mail: info@hemophilia-nc.org
Website: www.hemophilia-nc.org
Matt Barnes, President
info@hemophilia-nc.org
Sue Cowell, Executive Director

OHIO

Central Ohio Chapter of NHF
P.O. Box 345
Worthington, OH 43085-0345
Phone: 1 614 847-0354
Kathy Stewart, Co-President
Steje08@aol.com
Kate Stentz, Co-President
stentzfam@sbcglobal.net

Tri-States Bleeding Disorders Foundation, A Chapter of NHF
635 W. Seventh Street, Suite 407
Cincinnati, OH 45203
Phone: 1 513 961-4366
Fax: 1 513 961-1740
hemophilia@fuse.net
Lisa Raterman, Executive Director
Gary Dillhoff, President

Northern Ohio Hemophilia Foundation
One Independence Place
4807 Rockside Road, Suite 380
Cleveland, OH 44131
Phone: 1 216 834-0051
Toll-free phone: 1 800 554-HEMO (4366)
Fax: 1 216 834-0055
Website: www.nohf.org
Lynne Capretto, Executive Director
lynnecapretto@nohf.org
Teresa Glass, President
dwhiteaker@cle.boehringer_ingelheim.com
La’Chandra Oliver, Administrative Manager

Northwest Ohio Hemophilia Foundation
P.O. Box 12606
Toledo, OH 43606Phone: 1 419 291-5882
Fax: 1 419 479-3269
Website: www.nwohemophilia.org
Carla Wells, Executive Director
carla@nwohemophilia.org
Scott Newson, President

Southwestern Ohio Hemophilia Foundation
82 Elva Court, Suite B
Dayton, OH 45377
Phone: 1 937 415-0644
Fax: 1 937 415-0604
E-mail: SWOHF@aol.com
Dena M. Shepard, President
Teresa Bridges, Executive Director

FAMOHIO, Inc.
www.famohio.org
E-mail: info@famohio.org
Teresa Bridges, President

OKLAHOMA

Oklahoma Hemophilia Foundation
P.O. Box 270605
Oklahoma City, OK 73137
UPS/FedEx
1407 West Blake
El Reno, OK 73036
Phone: 1 405 262-8909
E-mail: gmgbg@cox.net
Website: www.okhemophilia.org

OREGON

Hemophilia Foundation of Oregon
5319 SW Westgate Drive, Suite 126
Portland, OR 97221
Phone: 1 503 297-7207
Fax: 1 503 297-0127
www.hfo.info
E-mail: hfo@easystreet.com
Linda Charles, President

PENNSYLVANIA

Delaware Valley Chapter of the National Hemophilia Foundation
222 South Easton Road, Suite 122
Glenside, PA 19038
Phone: 1 215 885-6500
Fax: 1 215 885-6074
Website: www.hemophiliasupport.org
E-mail: hemophilia@navpoint.com
Ann Rogers, Executive Director
Clifford Cohn, President

Western Pennsylvania Chapter of the National Hemophilia Foundation
532 South Aiken Avenue, Suite 309
Pittsburgh, PA 15232
Phone: 1 412 683-2231
Fax: 1 412 683-2568
E-mail: wpcnhf@earthlink.net
Website: www.westpennhemophilia.org
Kerry Fatula, Executive Director
Ida McFarren, President

Brandywine Valley Hemophilia Foundation
514 Beechwood Drive
Kennet Square , PA 19348-1804
Phone: 1 610 388-1488
Ms. Nancy Olsen

HEDGE
P.O. Box 1575
Plains, PA 18705
Phone: 1 866 77-HEDGE
Anne Kelly, Executive Director
E-mail: graniagirl@aol.com

Hemophilia and von Willebrand Education Network (HAVEN)
P.O. Box 9243
Erie, PA 16505-8243
Phone: 1 814 873-1618
Sue Gaerttner, President
E-mail: haven8361@yahoo.com

SOUTH CAROLINA

Hemophilia of South Carolina
P.O. Box 2386
Irmo, SC 29063
Phone: 1 888 829-4849
Fax: 1 888 829-4849
E-mail: Factoreight@aol.com
Website: www.hemophiliaofsouthcarolina.org
Vic Fisher, Vice President
Brandy Stewart President

TENNESSEE

Tennessee Hemophilia and Bleeding Disorders Foundation
203 Jefferson Street
Smyrna, TN 37167
Phone: 1 615 220-4868
Fax: 1 615 220-4889
E-mail: mail@thbdf.org
Website: www.thbdf.org
Mary Hord, Executive Director
H. Kent Russ, President

TEXAS

Lonestar Chapter of the National Hemophilia Foundation
17414 Fairgrove Park Drive
Houston, TX 77095
Hours: 8:00 a.m. to 3:00 p.m. CT,  Monday to Friday
Phone: 1 281 861-6644
Fax: 1 281 861-6766
Toll-free phone: 1 888 LSC-NHF1
Debbie de la Riva
Executive Director
E-mail: Director@LoneStarHemophilia.org
Website: www.lonestarhemophilia.org

Central Texas Hemophilia Association
3530 Forest Lane, Suite 311
Dallas, TX 75234
Phone: 1 214 351-4595
Fax: 1 214 654-9954
Website: www.texcen.org
E-mail: mail@texcen.org
Michael Farnell, President
mike@texcen.org
Tara Benker, Administrative Director
tara@texcen.org
Shanna Garcia, Secretary
shanna@texcen.org

Hemophilia Outreach of El Paso
Phone: 1 915 859-7992
Yolanda Ortiz, President
E-mail: Yolanda-ortiz@sbcglobal.net

UTAH

Utah Hemophilia Foundation
772 East 3300 South, Suite 210
Salt Lake City, UT 84106
Phone: 1 801 484-0325
Fax: 1 801 484-4177
Website: www.hemophiliautah.org
Reg Ecker, President
rege@securitynational.com
Scott Muir, Executive Director
smuir@hemophiliautah.org

VIRGINIA

Hemophilia Association of the Capital Area
10560 Main St., Suite 604
Fairfax, VA 22030
Phone: 1 703 352-7641
Fax: 1 703 352-2145
Website: www.hacacares.org
E-mail: hacacares@aol.com
Sandi Qualley, Executive Director
Keith Bushey, President

United Virginia Chapter of the NHF
P.O. Box 188
Midlothian, VA 23113
1505 Leewal Court
Richmond, VA 23238
Phone: 1 804 740-8643
Toll-free phone: 1 800 266-8438
Fax: 1 804 740-8643 (call first)
Kevin O'Connor, President
Kelly Waters, Executive Director
www.vahemophilia.org
vahemophiliaed@verizon.net

WASHINGTON

Bleeding Disorders Foundation of Washington
9659 Firdale Avenue
Edmunds, WA 98020
Phone: 1 206 652-5789
Fax: 1 206 652-5790
Website: www.bdfwa.org
E-mail: regina@bdfwa.org
Regina Timmons, Executive Director
Reid Morgan, President

Inland Empire Bleeding Disorders
1010 Riverside Drive
P.O. Box 4565
West Richland, WA 99353
Phone: 1 509 967-7417
1 866 710-4323
E-mail: iebd4u@verizon.net
Executive Director: Debbie Campeau
President: Jill McCary
Constit. ID no.: 0077137

WISCONSIN

Great Lakes Hemophilia Foundation

638 North 18th Street, Suite 108
Milwaukee, WI 53233
Phone: 1 414 257-0200
Toll-free phone: 1 888 797-4543
Fax: 1 414 257-1225
Website: www.glhf.org
E-mail: glhf@execp.com
Kathleen Roach, Executive Director
KRoach@glhf.org
Beth Rodenhuis, President

National Hemophilia Organizations

Hemophilia Federation of America
1405 West Pinhook, Suite 101
Lafayette, LA 70503
Phone: 1 337 261-9787 or 1 800 230-9797
Fax: 1 337 261-1787
Susan Swindle, Administrative Director
www.hemophiliafed.org
E-mail: info@hemophiliafed.org

LA Kelley Communications
68 East Main Street, Suite 102
Georgetown, MA 01833
Phone: 1 978 352-7657 or 1 800 249-7977
Fax: 1 978 352-6254
www.kelleycom.com
E-mail: info@kelleycom.com
Laureen A. Kelley, President

National Hemophilia Foundation
116 West 32nd Street , 11th Floor
New York, NY 10001
Phone: 1 212 328-3700
Fax: 1 212 328-3777
Information Resource Center : 1 800 42-HANDI
HANDI Fax: 1 212 328-3799
HANDI E-mail: handi@hemophilia.org
Webmaster: webmaster@hemophilia.org

The Coalition for Hemophilia B, Inc.
225 West 34th Street, Suite 710
New York, NY 10122
Phone: 1 212 554-6898
Fax: 1 212 254-6906
John Taylor, Chairman
www.boygenius.com/cfb
E-mail: cfb@boygenius.com

World Federation of Hemophilia USA
PMB 142, 911 Central Avenue
Albany, NY 12206-1304
Phone: 1 602 765-7927
Fax: 1 602 765-7927
Mike Rosenthal, National Director
Website URL: www.wfhusa.org
E-mail: mike@wfhusa.org