Many of you are old enough to remember the days when no factor was available. Now we’re living in an age where hemophilia gene therapy is becoming possible.
And many of you were once told that you probably wouldn’t live beyond your teens. Yours is a generation that has seen wonderful highs—the freedom brought about by home infusion—to heartbreaking lows—the loss of many of your peers to HIV and hepatitis C.
You have a unique perspective and have broken through many of the previous restraints on lifestyle. Though you can pass on your knowledge to the younger generation, adulthood is a time to keep learning. It is important that you keep current on each of these issues:
As an adult, it’s up to you to maintain a healthy body. The changes you’re experiencing are universal and not limited to those with hemophilia. You can still enjoy a long and healthy lifestyle by following a moderate exercise program, minding your diet, and getting regular medical care.
Twenties. In your twenties, you’re at the peak of your physical powers. If you weren’t active in your teens, now’s the time to strengthen your muscles and joints. Check with your doctor or physical therapist to see what sport might fit your abilities. Possibilities include swimming, tennis, golf, weight training, cardio exercises, and walking.
Thirties. You’ll find that some activities begin to tax your stamina. Your nutritional needs will change, and you may also start to put on some weight. Your body might be adjusting to a slower metabolism, which means that your food intake needs to be decreased and your daily exercise increased. Joint problems that began when you were younger might become severe enough to require surgery or replacement.
Forties. You may notice some new aches and pains, aside from those caused by your bleeding disorder. You may need additional medication for other conditions, such as Type 2 diabetes, high blood pressure, or high cholesterol. Vision changes are common, so you may need a change in eyewear.
Fifties and up. As you continue to age, you’ll experience even more delightful changes.
- Decreased height
- Decreased bone mass
- Gradual slowing of body functions
- Development of degenerative conditions, such as arthritis
- Slower reflexes
- Decreased physical endurance
- Dry skin, wrinkles, and loss of skin elasticity
- Receding hairline
- Progressive loss of hearing
- Decreased balance and coordination
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